Medical Research (H129) IRS Verified DX Registered 990 on File

HEREDITARY NEUROPATHY FOUNDATION INC

EIN: 13-4137654 · NEW YORK, NY 10128-3623 · United States · FY 2023 Data

3 out of 5 54 / 100 Based on 2+ years of filings

Financial strength (30%) 77/100

Reliability (20%) 55/100

Effectiveness (25%) 78/100

Impact (25%) No data yet

Financial data: FY 2023 · Scored 9/13/2026

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Mission Statement

Please know that you will be helping millions of people worldwide who are affected by this terrible and often debilitating disease. All proceeds from the event will go to support HNF’s Therapeutic Research in Accelerated Discovery (TRIAD) program, a collaborative research program of academia, government and industry partners.

Financial Overview — FY 2023

$544K

Total Revenue

$671K

Total Expenses

$1.5M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 85.2%

Fundraising Efficiency N/A

Operating Reserve 26.86x

Liability-to-Asset 0.8%

Revenue Diversification 103.0%

Executive Compensation $66K

Compared with Peers

FY 2023

Compared with 1,004 similar organizations (United States, Medical Research, $100K–$1M in expenses), FY 2023.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	85.2%	86.3%	P10P90	Below median
Admin expense ratio Management and general / total expenses · lower is better	6.6%	10.6%	P10P90	Above median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	8.3%	0.0%	P10P90	Bottom quarter
Operating reserve Months of expenses covered by net assets · higher is better	26.9 mo	13.1 mo	P10P90	Above median
Liabilities to assets Total liabilities / total assets · lower is better	0.8%	0.3%	P10P90	Below median
Revenue concentration Share of revenue from the largest source · lower is better	103.0%	95.3%	P10P90	Bottom quarter
Revenue growth Year over year revenue growth	-56.9%	4.8%	P10P90
Expense growth Year over year expense growth	-11.6%	12.9%	P10P90
Surplus margin Surplus as a share of revenue	-23.5%	-0.2%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2023	$544K	$671K	$1.5M	85.2%	2
2022	$1.3M	$759K	$1.6M	90.6%	2

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Organization Details

EIN: 13-4137654
State: NY
City: NEW YORK
ZIP: 10128-3623
Classification: H129
Category: Medical Research
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 2001
Foundation Code: 15
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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