Charity Search / OSTEOGENESIS IMPERFECTA FOUNDATION INC
Medical Research (H50J) IRS Verified DX Registered 990 on File

OSTEOGENESIS IMPERFECTA FOUNDATION INC

EIN: 23-7076021 · GAITHERSBURG, MD 20878 · United States · FY 2024 Data
5 out of 5
CharityAI™ Score
Not yet evaluated
Mission Statement

The mission of the OI Foundation is to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness, and mutual support. The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to supporting people with osteogenesis imperfecta and their families. The Foundation’s mission is to improve the quality of life for people affected by OI through research, education, awareness, and mutual support. The OI Foundation began in 1970 by a small group of parents. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the Board of Directors and oversee the Foundation’s operations have OI themselves or are parents of children with OI.

Financial Overview — FY 2024
$2.3M
Total Revenue
$2.6M
Total Expenses
N/A
Net Assets
12
Employees
Revenue Sources
Expense Breakdown
Program Expense Ratio N/A
Fundraising Efficiency 45.7%
Operating Reserve N/A
Liability-to-Asset 25.8%
Revenue Diversification N/A
Executive Compensation $215K
Impact
1 program
Outcome / Program People Served Cost / Service # Completed Duration
Improving the quality of life for those with Osteogenesis Imperfecta. 11,000 $100.00 Lifetime
Financial History
Year Revenue Expenses Net Assets Program % Staff
2024 $2.3M $2.6M N/A 12
2023 $2.2M $2.1M $1.7M 78.1% 13
2022 $2.1M $2.3M N/A 11
2021 $1.9M $1.6M N/A 11
Donor Reviews
No reviews yet

Be the first to share your experience with this organization.


Write a Review
Minimum 20 characters
Reviews appear after moderation (usually within 24 hours)
Organization Details
EIN
23-7076021
State
MD
City
GAITHERSBURG
ZIP
20878
NTEE Code
H50J
Category
Medical Research
Rating
83★
Last Updated
Oct 2025
IRS Ruling Year
1970
Foundation Code
16
Form 990
On File
Back to Search New Search