Medical Research (H50J) IRS Verified DX Registered 990 on File

OSTEOGENESIS IMPERFECTA FOUNDATION INC

EIN: 23-7076021 · GAITHERSBURG, MD 20878-0007 · United States · FY 2025 Data

4 out of 5 74 / 100 Based on 2+ years of filings

Financial strength (30%) 81/100

Reliability (20%) 55/100

Effectiveness (25%) 81/100

Impact (25%) 75/100

Financial data: FY 2025 · Scored 9/13/2026

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Mission Statement

The mission of the OI Foundation is to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness, and mutual support. The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to supporting people with osteogenesis imperfecta and their families. The Foundation’s mission is to improve the quality of life for people affected by OI through research, education, awareness, and mutual support. The OI Foundation began in 1970 by a small group of parents. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the Board of Directors and oversee the Foundation’s operations have OI themselves or are parents of children with OI.

Financial Overview — FY 2025

$2.6M

Total Revenue

$2.6M

Total Expenses

$1.4M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 77.6%

Fundraising Efficiency 167.8%

Operating Reserve 6.25x

Liability-to-Asset 17.6%

Revenue Diversification 82.0%

Executive Compensation $261K

Compared with Peers

FY 2025

Compared with 132 similar organizations (United States, Medical Research, $1M–$10M in expenses), FY 2025.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	77.6%	83.0%	P10P90	Below median
Admin expense ratio Management and general / total expenses · lower is better	14.6%	9.9%	P10P90	Below median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	7.8%	2.6%	P10P90	Below median
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	167.8%	110.6%	P10P90	Below median
Operating reserve Months of expenses covered by net assets · higher is better	6.3 mo	14.4 mo	P10P90	Below median
Liabilities to assets Total liabilities / total assets · lower is better	17.6%	13.2%	P10P90	Below median
Revenue concentration Share of revenue from the largest source · lower is better	82.0%	90.0%	P10P90	Above median
Revenue growth Year over year revenue growth	14.8%	7.4%	P10P90
Expense growth Year over year expense growth	-0.4%	3.0%	P10P90
Surplus margin Surplus as a share of revenue	-0.7%	4.8%	P10P90

Impact

1 program

Outcome / Program	People Served	Cost / Service	# Completed	Duration
Improving the quality of life for those with Osteogenesis Imperfecta.	11,000	$100.00	—	Lifetime

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2025	$2.6M	$2.6M	$1.4M	77.6%	13
2024	$2.3M	$2.6M	N/A	—	12
2023	$2.2M	$2.1M	$1.7M	78.1%	13
2022	$2.1M	$2.3M	$1.5M	82.9%	11
2021	$1.9M	$1.6M	N/A	—	11

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Organization Details

EIN: 23-7076021
State: MD
City: GAITHERSBURG
ZIP: 20878-0007
Classification: H50J
Category: Medical Research
Rating: 4★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 1970
Foundation Code: 16
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

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