Diseases & Disorders (G96) IRS Verified DX Registered 990 on File

CHIARI & SYRINGOMYELIA FOUNDATION

EIN: 26-1316274 · STATEN ISLAND, NY 10312-5632 · United States · FY 2025 Data

3 out of 5 51 / 100 Based on 2+ years of filings

Financial strength (30%) 77/100

Reliability (20%) 50/100

Effectiveness (25%) 71/100

Impact (25%) No data yet

Financial data: FY 2025 · Scored 9/13/2026

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Financial Overview — FY 2025

$1.2M

Total Revenue

$917K

Total Expenses

$1.6M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 70.3%

Fundraising Efficiency 76.3%

Operating Reserve 21.14x

Liability-to-Asset 3.9%

Revenue Diversification 105.9%

Compared with Peers

FY 2025

Compared with 693 similar organizations (United States, Diseases & Disorders, $100K–$1M in expenses), FY 2025.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	70.3%	83.5%	P10P90	Below median
Admin expense ratio Management and general / total expenses · lower is better	12.7%	10.0%	P10P90	Below median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	17.0%	0.0%	P10P90	Bottom quarter
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	76.3%	15.8%	P10P90	Bottom quarter
Operating reserve Months of expenses covered by net assets · higher is better	21.1 mo	11.9 mo	P10P90	Above median
Liabilities to assets Total liabilities / total assets · lower is better	3.9%	0.6%	P10P90	Below median
Revenue concentration Share of revenue from the largest source · lower is better	105.9%	93.4%	P10P90	Bottom quarter
Revenue growth Year over year revenue growth	17.4%	7.5%	P10P90
Expense growth Year over year expense growth	8.4%	8.1%	P10P90
Surplus margin Surplus as a share of revenue	20.4%	4.2%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2025	$1.2M	$917K	$1.6M	70.3%	5
2024	$982K	$847K	$1.3M	69.0%	5
2023	$979K	$768K	$1.1M	72.0%	5
2022	$769K	$760K	$796K	65.6%	5
2021	$937K	$697K	N/A	—	5

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Organization Details

EIN: 26-1316274
State: NY
City: STATEN ISLAND
ZIP: 10312-5632
Classification: G96
Category: Diseases & Disorders
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 2003
Foundation Code: 15
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

★★★★★ 80–100 ★★★★☆ 60–79 ★★★☆☆ 40–59 ★★☆☆☆ 20–39 ★☆☆☆☆ 1–19

A pillar with no data counts as zero. Without impact metrics the score is capped at 59 (three stars): only the charity can supply that data.
The coverage grade (A to D) says how much filing data the score rests on; NONE means there is not enough to rate.
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