Diseases & Disorders (G110) IRS Verified DX Registered 990 on File

FAMILIES OF SMA

EIN: 36-3320440 · ELK GROVE VLG, IL 60007-2400 · United States · FY 2025 Data

3 out of 5 58 / 100 Based on 2+ years of filings

Financial strength (30%) 83/100

Reliability (20%) 55/100

Effectiveness (25%) 88/100

Impact (25%) No data yet

Financial data: FY 2025 · Scored 9/13/2026

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CharityAI™ Score

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Mission Statement

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by: - Funding and advancing a comprehensive research program; - Supporting SMA families through networking, information and services; - Improving care for all SMA patients; - Educating health professionals and the public about SMA; - Enlisting government support for SMA; - Embracing all touched by SMA in a caring community. Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

Financial Overview — FY 2025

$15.2M

Total Revenue

$14.0M

Total Expenses

$7.4M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 77.3%

Fundraising Efficiency 264.9%

Operating Reserve 6.35x

Liability-to-Asset 30.3%

Revenue Diversification 50.4%

Executive Compensation $1.2M

Compared with Peers

FY 2025

Compared with 77 similar organizations (United States, Diseases & Disorders, $10M–$100M in expenses), FY 2025.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	77.3%	85.3%	P10P90	Below median
Admin expense ratio Management and general / total expenses · lower is better	9.3%	11.8%	P10P90	Above median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	13.4%	0.8%	P10P90	Bottom quarter
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	264.9%	350.6%	P10P90	Above median
Operating reserve Months of expenses covered by net assets · higher is better	6.4 mo	9.7 mo	P10P90	Below median
Liabilities to assets Total liabilities / total assets · lower is better	30.3%	20.6%	P10P90	Below median
Revenue concentration Share of revenue from the largest source · lower is better	50.4%	92.8%	P10P90	Top quarter
Revenue growth Year over year revenue growth	2.9%	8.7%	P10P90
Expense growth Year over year expense growth	-10.3%	7.8%	P10P90
Surplus margin Surplus as a share of revenue	7.9%	2.0%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2025	$15.2M	$14.0M	$7.4M	77.3%	53
2024	$14.8M	$15.6M	$6.1M	79.4%	56
2023	$13.7M	$14.2M	$6.8M	80.5%	57
2022	$15.0M	$14.2M	N/A	—	61

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Organization Details

EIN: 36-3320440
State: IL
City: ELK GROVE VLG
ZIP: 60007-2400
Classification: G110
Category: Diseases & Disorders
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 1984
Foundation Code: 15
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

★★★★★ 80–100 ★★★★☆ 60–79 ★★★☆☆ 40–59 ★★☆☆☆ 20–39 ★☆☆☆☆ 1–19

A pillar with no data counts as zero. Without impact metrics the score is capped at 59 (three stars): only the charity can supply that data.
The coverage grade (A to D) says how much filing data the score rests on; NONE means there is not enough to rate.
An organization that is not in good standing with its registry (for example a revoked tax exemption) is shown as Not rated.
"Compared with peers" places the charity's key ratios against organizations of the same country, sector and size.

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