CANAVAN RESEARCH ILLINOIS
Mission Statement
A volunteer-based public children's charity. The mission of Canavan Research Illinois is to direct funding towards research aimed at developing therapies to treat and cure Canavan disease while networking families to form an engaged community poised to reach the clinic. Our efforts have resulted in three gene therapy clinical trials. We have also funded the development of a combination of medicines to slow the progression of Canavan disease in some children, this is known as the "Canavan Cocktail". Canavan disease is a childhood neurodegenerative childhood disease that is often compared to a childhood version of ALS.
Financial Overview — FY 2023
Compared with Peers
FY 2023| Ratio | This org | Peer median | Position (P10 → P90) | |
|---|---|---|---|---|
|
Program expense ratio
Program expenses / total expenses
· higher is better
|
84.6% | 80.3% |
P10P90
|
Above median |
|
Operating reserve
Months of expenses covered by net assets
· higher is better
|
40.3 mo | 37.0 mo |
P10P90
|
Above median |
|
Revenue concentration
Share of revenue from the largest source
· lower is better
|
100.0% | 100.0% |
P10P90
|
Bottom quarter |
|
Revenue growth
Year over year revenue growth
|
5.6% | -1.6% |
P10P90
|
|
|
Expense growth
Year over year expense growth
|
48.2% | -3.6% |
P10P90
|
|
|
Surplus margin
Surplus as a share of revenue
|
-77.1% | 12.7% |
P10P90
|
Financial History
| Year | Revenue | Expenses | Net Assets | Program % | Staff |
|---|---|---|---|---|---|
| 2023 | $21K | $38K | $127K | 84.6% | — |
| 2022 | $20K | $26K | $143K | 82.4% | — |
| 2021 | $36K | $27K | N/A | — | 1 |
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