Medical Research (H124) IRS Verified DX Registered 990 on File

THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

EIN: 41-2073220 · KNG OF PRUSSA, PA 19406-2726 · United States · FY 2024 Data

3 out of 5 57 / 100 Based on 2+ years of filings

Financial strength (30%) 79/100

Reliability (20%) 55/100

Effectiveness (25%) 88/100

Impact (25%) No data yet

Financial data: FY 2024 · Scored 9/13/2026

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Financial Overview — FY 2024

$13.1M

Total Revenue

$11.5M

Total Expenses

$50.6M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 86.1%

Fundraising Efficiency 737.5%

Operating Reserve 52.66x

Liability-to-Asset 6.3%

Revenue Diversification 94.1%

Executive Compensation $672K

Compared with Peers

FY 2024

Compared with 98 similar organizations (United States, Medical Research, $10M–$100M in expenses), FY 2024.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	86.1%	82.0%	P10P90	Above median
Admin expense ratio Management and general / total expenses · lower is better	4.7%	12.7%	P10P90	Top quarter
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	9.3%	0.7%	P10P90	Bottom quarter
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	737.5%	693.4%	P10P90	Below median
Operating reserve Months of expenses covered by net assets · higher is better	52.7 mo	14.5 mo	P10P90	Top quarter
Liabilities to assets Total liabilities / total assets · lower is better	6.3%	21.3%	P10P90	Top quarter
Revenue concentration Share of revenue from the largest source · lower is better	94.1%	90.8%	P10P90	Below median
Revenue growth Year over year revenue growth	53.9%	9.6%	P10P90
Expense growth Year over year expense growth	19.3%	7.8%	P10P90
Surplus margin Surplus as a share of revenue	12.3%	-1.2%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2024	$13.1M	$11.5M	$50.6M	86.1%	55
2023	$8.5M	$9.7M	$45.1M	81.1%	47
2022	$12.1M	$8.6M	N/A	—	35

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Organization Details

EIN: 41-2073220
State: PA
City: KNG OF PRUSSA
ZIP: 19406-2726
Classification: H124
Category: Medical Research
Rating: 3★
Coverage: A
Last Updated: Aug 2026
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

★★★★★ 80–100 ★★★★☆ 60–79 ★★★☆☆ 40–59 ★★☆☆☆ 20–39 ★☆☆☆☆ 1–19

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