Diseases & Disorders (G80M) IRS Verified DX Registered 990 on File

SOTOS SYNDROME SUPPORT ASSOCIATION

EIN: 43-1568496 · WHEATON, IL 60189-4626 · United States · FY 2024 Data

3 out of 5 51 / 100 Based on 2+ years of filings

Financial strength (30%) 72/100

Reliability (20%) 55/100

Effectiveness (25%) 73/100

Impact (25%) No data yet

Financial data: FY 2024 · Scored 9/13/2026

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CharityAI™ Score

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Mission Statement

The Sotos Syndrome Support Association, organized in 1998, is made up of families, physicians,genetic counselors thoughout the United States. The SSSA is a non-profit organization incorpprated in the state of Missouri. The organization hosts their annual conference on a weekend every summer. Conferences are held in the United States and Canada. A groug of wonderful volunteers assist in managing the many aspect to make this weekend a educational, family friendly, and most important memorable.

Financial Overview — FY 2024

$120K

Total Revenue

$116K

Total Expenses

$229K

Net Assets

N/A

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 97.4%

Fundraising Efficiency N/A

Operating Reserve 23.69x

Liability-to-Asset N/A

Revenue Diversification 56.9%

Compared with Peers

FY 2024

Compared with 1,541 similar organizations (United States, Diseases & Disorders, $100K–$1M in expenses), FY 2024.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	97.4%	83.1%	P10P90	Top quarter
Operating reserve Months of expenses covered by net assets · higher is better	23.7 mo	12.0 mo	P10P90	Above median
Revenue concentration Share of revenue from the largest source · lower is better	56.9%	93.9%	P10P90	Top quarter
Revenue growth Year over year revenue growth	86.3%	7.6%	P10P90
Expense growth Year over year expense growth	18.7%	9.1%	P10P90
Surplus margin Surplus as a share of revenue	2.9%	1.8%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2024	$120K	$116K	$229K	97.4%	—
2023	$64K	$98K	$226K	96.7%	—
2022	$25K	$14K	$259K	86.1%	—
2021	$64K	$5K	N/A	—	1

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Organization Details

EIN: 43-1568496
State: IL
City: WHEATON
ZIP: 60189-4626
Classification: G80M
Category: Diseases & Disorders
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 1988
Foundation Code: 16
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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