Diseases & Disorders (G80) IRS Verified DX Registered 990 on File

KOOLEN-DE VRIES SYNDROME FOUNDATION

EIN: 46-3208388 · WILMINGTON, NC 28409-4201 · United States · FY 2024 Data

3 out of 5 53 / 100 Based on 2+ years of filings

Financial strength (30%) 80/100

Reliability (20%) 50/100

Effectiveness (25%) 78/100

Impact (25%) No data yet

Financial data: FY 2024 · Scored 9/13/2026

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Mission Statement

To educate, increase awareness and promote research for the support and enrichment of individuals living with Koolen-de Vries Syndrome and their families.

Financial Overview — FY 2024

$263K

Total Revenue

$270K

Total Expenses

$574K

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 92.1%

Fundraising Efficiency N/A

Operating Reserve 25.46x

Liability-to-Asset 0.0%

Revenue Diversification 99.8%

Compared with Peers

FY 2024

Compared with 1,541 similar organizations (United States, Diseases & Disorders, $100K–$1M in expenses), FY 2024.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	92.1%	83.1%	P10P90	Above median
Admin expense ratio Management and general / total expenses · lower is better	5.8%	10.9%	P10P90	Above median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	2.1%	0.3%	P10P90	Below median
Operating reserve Months of expenses covered by net assets · higher is better	25.5 mo	12.0 mo	P10P90	Above median
Liabilities to assets Total liabilities / total assets · lower is better	0.0%	0.7%	P10P90	Top quarter
Revenue concentration Share of revenue from the largest source · lower is better	99.8%	93.9%	P10P90	Below median
Revenue growth Year over year revenue growth	-13.9%	7.6%	P10P90
Expense growth Year over year expense growth	-16.7%	9.1%	P10P90
Surplus margin Surplus as a share of revenue	-2.7%	1.8%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %
2024	$263K	$270K	$574K	92.1%
2023	$306K	$325K	$581K	91.3%
2022	$237K	$42K	$600K	55.0%
2021	$258K	$144K	N/A	—

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Organization Details

EIN: 46-3208388
State: NC
City: WILMINGTON
ZIP: 28409-4201
Classification: G80
Category: Diseases & Disorders
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 2013
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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The coverage grade (A to D) says how much filing data the score rests on; NONE means there is not enough to rate.
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"Compared with peers" places the charity's key ratios against organizations of the same country, sector and size.

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