Health Care (E86) IRS Verified DX Registered 990 on File

PTEN HAMARTOMA TUMOR SYNDROME FOUNDATION

EIN: 46-4279769 · OWENS X RDS, AL 35763-8654 · United States · FY 2023 Data

3 out of 5 50 / 100 Based on 2+ years of filings

Financial strength (30%) 73/100

Reliability (20%) 50/100

Effectiveness (25%) 73/100

Impact (25%) No data yet

Financial data: FY 2023 · Scored 9/13/2026

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CharityAI™ Score

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Mission Statement

The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.

Financial Overview — FY 2023

$74K

Total Revenue

$67K

Total Expenses

$115K

Net Assets

N/A

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 100.8%

Fundraising Efficiency N/A

Operating Reserve 20.70x

Liability-to-Asset 23.3%

Revenue Diversification 95.3%

Compared with Peers

FY 2023

Compared with 4,805 similar organizations (United States, Health Care, under $100K in expenses), FY 2023.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	100.8%	80.5%	P10P90	Top quarter
Operating reserve Months of expenses covered by net assets · higher is better	20.7 mo	29.2 mo	P10P90	Below median
Liabilities to assets Total liabilities / total assets · lower is better	23.3%	0.0%	P10P90	Bottom quarter
Revenue concentration Share of revenue from the largest source · lower is better	95.3%	99.9%	P10P90	Above median
Revenue growth Year over year revenue growth	20.9%	-2.7%	P10P90
Expense growth Year over year expense growth	-2.6%	-1.4%	P10P90
Surplus margin Surplus as a share of revenue	10.0%	13.1%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2023	$74K	$67K	$115K	100.8%	—
2022	$61K	$69K	$108K	99.3%	—
2021	$180K	$62K	N/A	—	1

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Organization Details

EIN: 46-4279769
State: AL
City: OWENS X RDS
ZIP: 35763-8654
Classification: E86
Category: Health Care
Rating: 3★
Coverage: A
Last Updated: Aug 2026
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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