Medical Research (H99) IRS Verified DX Registered 990 on File

FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA

EIN: 52-2122720 · DOWNINGTOWN, PA 19335-1763 · United States · FY 2023 Data

3 out of 5 51 / 100 Based on 2+ years of filings

Financial strength (30%) 65/100

Reliability (20%) 55/100

Effectiveness (25%) 81/100

Impact (25%) No data yet

Financial data: FY 2023 · Scored 9/13/2026

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CharityAI™ Score

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Mission Statement

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia. to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. https://www.curefa.org/why-we-exist/our-mission/ Genetic therapies are treatments that target FA at the DNA level. This is a rapidly growing field. As FA genetic therapy programs move toward clinical trials, understanding how these therapies work can help you make informed decisions about participation.

Financial Overview — FY 2023

$11.2M

Total Revenue

$12.2M

Total Expenses

$6.1M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 94.9%

Fundraising Efficiency 70.6%

Operating Reserve 6.05x

Liability-to-Asset 20.7%

Revenue Diversification 107.2%

Executive Compensation $292K

Compared with Peers

FY 2023

Compared with 132 similar organizations (United States, Medical Research, $10M–$100M in expenses), FY 2023.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	94.9%	82.7%	P10P90	Top quarter
Admin expense ratio Management and general / total expenses · lower is better	2.7%	13.5%	P10P90	Top quarter
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	2.4%	0.0%	P10P90	Below median
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	70.6%	639.6%	P10P90	Top quarter
Operating reserve Months of expenses covered by net assets · higher is better	6.1 mo	12.6 mo	P10P90	Below median
Liabilities to assets Total liabilities / total assets · lower is better	20.7%	29.0%	P10P90	Above median
Revenue concentration Share of revenue from the largest source · lower is better	107.2%	91.9%	P10P90	Bottom quarter
Revenue growth Year over year revenue growth	1.5%	7.4%	P10P90
Expense growth Year over year expense growth	9.6%	10.1%	P10P90
Surplus margin Surplus as a share of revenue	-8.9%	-2.4%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %	Staff
2023	$11.2M	$12.2M	$6.1M	94.9%	17
2022	$11.0M	$11.1M	$6.8M	95.5%	16
2021	$7.7M	$9.1M	N/A	—	13

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Organization Details

EIN: 52-2122720
State: PA
City: DOWNINGTOWN
ZIP: 19335-1763
Classification: H99
Category: Medical Research
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 1998
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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