Medical Research (H96) IRS Verified DX Registered

GETTINGUP ORG INC

EIN: 88-4007984 · LEES SUMMIT, MO 64064-1359 · United States · FY 2023 Data

1 out of 5 10 / 100 Based on summary figures only

Financial strength (30%) No data yet

Reliability (20%) 20/100

Effectiveness (25%) 23/100

Impact (25%) No data yet

Scored 9/13/2026

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CharityAI™ Score

Not yet evaluated

Mission Statement

GettingUp.Org, Inc. works to help educate the public and bring attention to rare adult onset conditions, specifically Inclusion Body Myositis. Our primary goals are to find treatments and cures through supporting research, identifying needs, advocating, and serving patients where we can. We are a 501(c)(3) nonprofit and appreciate both your volunteer time and financial support.

Financial Overview — FY 2023

Total Revenue

Total Expenses

N/A

Net Assets

Employees

Revenue Sources

Program Expense Ratio N/A

Fundraising Efficiency 0.0%

Operating Reserve N/A

Liability-to-Asset 0.0%

Revenue Diversification N/A

Executive Compensation $0

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Organization Details

EIN: 88-4007984
State: MO
City: LEES SUMMIT
ZIP: 64064-1359
Classification: H96
Category: Medical Research
Rating: 1★
Coverage: D
Last Updated: Aug 2026
IRS Ruling Year: 2022

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

★★★★★ 80–100 ★★★★☆ 60–79 ★★★☆☆ 40–59 ★★☆☆☆ 20–39 ★☆☆☆☆ 1–19

A pillar with no data counts as zero. Without impact metrics the score is capped at 59 (three stars): only the charity can supply that data.
The coverage grade (A to D) says how much filing data the score rests on; NONE means there is not enough to rate.
An organization that is not in good standing with its registry (for example a revoked tax exemption) is shown as Not rated.
"Compared with peers" places the charity's key ratios against organizations of the same country, sector and size.

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